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Reviews (9) Patient-Reported Outcome Measures (PROMs) (288) Registered Report (560)

Published on in Vol 3, No 1 (2020): Jan-Jun

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/15588, first published .
Benefits and Disadvantages of Electronic Patient-reported Outcome Measures: Systematic Review

Benefits and Disadvantages of Electronic Patient-reported Outcome Measures: Systematic Review

Benefits and Disadvantages of Electronic Patient-reported Outcome Measures: Systematic Review

Authors of this article:

Jill Meirte1, 2 Author Orcid Image ;   Nick Hellemans2 Author Orcid Image ;   Mieke Anthonissen1, 2 Author Orcid Image ;   Lenie Denteneer2 Author Orcid Image ;   Koen Maertens1 Author Orcid Image ;   Peter Moortgat1 Author Orcid Image ;   Ulrike Van Daele1, 2 Author Orcid Image
Article Authors Cited by (147) Tweetations (16) Metrics

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  1. Hathaway C, Chavez M, Kadono M, Ketcher D, Rollison D, Siegel E, Peoples A, Ulrich C, Penedo F, Tworoger S, Gonzalez B. Improving Electronic Survey Response Rates Among Cancer Center Patients During the COVID-19 Pandemic: Mixed Methods Pilot Study. JMIR Cancer 2021;7(3):e30265 View
  2. Lin J, Welle N, Ding J, Chuen J. A look to the future: Pandemic-induced digital technologies in vascular surgery. Seminars in Vascular Surgery 2021;34(3):139 View
  3. Skåre T, Midtbust M, Lund J, Kaasa S, Dreyer A. Barriers and Facilitators When Implementing Electronic Patient-Reported Outcome Measures at a Municipal Cancer Care Unit. Cancer Nursing 2023;46(4):E268 View
  4. Robstad N, Westergren T, Mølland E, Abildsnes E, Haraldstad K, Stamnes Köpp U, Håland Å, Fegran L. Experiences of Norwegian child and school health nurses with the “Starting Right™” child health assessment innovation: a qualitative interview study. BMC Health Services Research 2022;22(1) View
  5. Pérez Peñate G, Ochoa Parra N, Domingo Morera J, Martínez Meñaca A, López Ramón M, Cadenas Menéndez S, León Marrero F, Gómara de la Cal S, Ghadban Garrido C, Royo Tolosana P, Martin Puentes J, Aldonza Aguayo R, Mahdavi H, Bacchini Jeanneret G, Escribano Subías P. Evaluation of a digital health system (PAHcare™) for routine care of patients with pulmonary arterial hypertension: The CBS-PAH study protocol. Frontiers in Public Health 2022;10 View
  6. Ng A, Liu K, Cheng W, Wong C, Cheng J, Lam J, Or C, Tse E, Lam C. Feasibility and acceptability of electronic EQ-5D-5L for routine measurement of HRQOL in patients with chronic musculoskeletal problems in Hong Kong primary care. Health and Quality of Life Outcomes 2022;20(1) View
  7. Ferré F, Laurent R, Furelau P, Doumard E, Ferrier A, Bosch L, Ba C, Menut R, Kurrek M, Geeraerts T, Piau A, Minville V. Perioperative Risk Assessment of Patients Using the MyRISK Digital Score Completed Before the Preanesthetic Consultation: Prospective Observational Study. JMIR Perioperative Medicine 2023;6:e39044 View
  8. Maza-Solano J, Biadsee A, Sowerby L, Calvo-Hernández C, Tucciarone M, Rocha T, Maniaci A, Saibene A, Chiesa-Estomba C, Radulesco T, Metwaly O, Lechien J, Alobid I, Locatello L. Chronic rhinosinusitis with nasal polyps management in the biologic therapy era: an international YO-IFOS survey. European Archives of Oto-Rhino-Laryngology 2023;280(5):2309 View
  9. Glenwright B, Simmich J, Cottrell M, O’Leary S, Sullivan C, Pole J, Russell T. Facilitators and barriers to implementing electronic patient-reported outcome and experience measures in a health care setting: a systematic review. Journal of Patient-Reported Outcomes 2023;7(1) View
  10. Heath E, Ackerman I, Lorimer M, Rainbird S, O'Donohue G, Brock A, Graves S, Harris I. National Implementation of an Electronic Patient-Reported Outcome Measures Program for Joint Replacement Surgery: Pilot Study. JMIR Formative Research 2022;6(4):e30245 View
  11. Kortbeek S, Pawaria A, Ng V. Equivalence of Paper and Electronic-Based Patient Reported Outcome Measures for Children: A Systematic Review. Journal of Pediatric Gastroenterology & Nutrition 2023;76(2):128 View
  12. Seipp H, Haasenritter J, Hach M, Becker D, Schütze D, Engler J, Ploeger C, Bösner S, Kuss K. Integrating patient- and caregiver-reported outcome measures into the daily care routines of specialised outpatient palliative care: a qualitative study (ELSAH) on feasibility, acceptability and appropriateness. BMC Palliative Care 2022;21(1) View
  13. Garani-Papadatos T, Natsiavas P, Meyerheim M, Hoffmann S, Karamanidou C, Payne S. Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach. Frontiers in Digital Health 2022;4 View
  14. Wingood M, Jones S, Gell N, Brach J, Peters D. Evaluation of Electronic and Pen-and-Paper Formats of the Inventory of Physical Activity Barriers: A Randomized Crossover Study. Journal of Physical Activity and Health 2022;19(8):540 View
  15. Zebralla V, Wichmann G, Wiegand S, Dietz A. Digitale Patient-Reported Outcome Measures in der Nachsorge von Kopf-Hals-Tumoren. Die Onkologie 2023;29(1):38 View
  16. Kwon J, Moynihan M, Lau F, Wolff A, Torrejon M, Irlbacher G, Hung L, Lambert L, Sawatzky R. Seeing the person before the numbers: Personas for understanding patients’ life stories when using patient-reported outcome measures in practice settings. International Journal of Medical Informatics 2023;172:105016 View
  17. Svedbo Engström M, Johansson U, Leksell J, Linder E, Eeg-Olofsson K. Implementing the Digital Diabetes Questionnaire as a Clinical Tool in Routine Diabetes Care: Focus Group Discussions With Patients and Health Care Professionals. JMIR Diabetes 2022;7(2):e34561 View
  18. Ernst S, Steinbeck V, Busse R, Pross C. Toward System-Wide Implementation of Patient-Reported Outcome Measures: A Framework for Countries, States, and Regions. Value in Health 2022;25(9):1539 View
  19. Hyland C, Pusic A, Liu J. Patient-Reported Outcomes and Surgical Quality. Clinics in Colon and Rectal Surgery 2023;36(04):259 View
  20. Ralphsmith M, Ahern S, Dean J, O’Connell H, Ruseckaite R. Development of a conceptual framework for a new patient-reported outcome measure for pain in women following mesh surgery for pelvic floor disorders: a qualitative study. International Urogynecology Journal 2023;34(7):1541 View
  21. Clark M, Romano C, Olayinka-Amao O, Whalley D, Crawford R, Pathak P, Brindicci C, Garg K, Kordy K, Everhard F, Patalano F, Roesler Z, Sutton T, Göransson O, Landles R, Naujoks C, Marvel J, Keininger D. Development and content validation of a self-completed, electronic Pediatric Asthma Symptom Diary. Journal of Patient-Reported Outcomes 2022;6(1) View
  22. TÜRKMEN C, KILINÇ H. The reliability of patient-reported outcomes in patients with chronic low back pain when answered in online, telephone, and face-to-face interview format. Journal of Basic and Clinical Health Sciences 2022;6(1):148 View
  23. Wijsenbeek M, Moor C, Johannson K, Jackson P, Khor Y, Kondoh Y, Rajan S, Tabaj G, Varela B, van der Wal P, van Zyl-Smit R, Kreuter M, Maher T. Home monitoring in interstitial lung diseases. The Lancet Respiratory Medicine 2023;11(1):97 View
  24. Anto A, Sousa-Pinto B, Bousquet J. Anaphylaxis and digital medicine. Current Opinion in Allergy & Clinical Immunology 2021;21(5):448 View
  25. Wiebe D, Remers S, Nippak P, Meyer J. Evaluation of an Online System for Routine Outcome Monitoring: Cross-sectional Survey Study. JMIR Mental Health 2021;8(12):e29243 View
  26. Lea A, Altschuler A, Leibowitz A, Levine-Hall T, McNeely J, Silverberg M, Satre D. Patient and provider perspectives on self-administered electronic substance use and mental health screening in HIV primary care. Addiction Science & Clinical Practice 2022;17(1) View
  27. Meirte J, Tyack Z. Electronic Patient-Reported Outcome Measures in Burn Scar Rehabilitation: A Guide to Implementation and Evaluation. European Burn Journal 2022;3(2):290 View
  28. Brugnaro B, Vieira F, Fernandes G, de Camargo O, Fumincelli L, de Campos A, Pavão S, Rocha N. Exploration of the Feasibility of Remote Assessment of Functioning in Children and Adolescents with Developmental Disabilities: Parents’ Perspectives and Related Contextual Factors. International Journal of Environmental Research and Public Health 2022;19(22):15101 View
  29. Adeoye-Olatunde O, Curran G, Jaynes H, Hillman L, Sangasubana N, Chewning B, Kreling D, Schommer J, Murawski M, Perkins S, Snyder M. Preparing for the spread of patient-reported outcome (PRO) data collection from primary care to community pharmacy: a mixed-methods study. Implementation Science Communications 2022;3(1) View
  30. MANSILHA A, CALDEVILLA H, PUSKÁS A, LUCIEN A, ROBY L, KIRIENKO A. MPFF 1000 mg chewable once daily vs. MPFF 500 mg twice daily in chronic venous disease: the double-blind, randomized, non-inferiority CHEWY trial. International Angiology 2023;41(6) View
  31. Ruseckaite R, Bavor C, Marsh L, Dean J, Daly O, Vasiliadis D, Ahern S. Evaluation of the acceptability of patient-reported outcome measures in women following pelvic floor procedures. Quality of Life Research 2022;31(7):2213 View
  32. Hek K, Rolfes L, van Puijenbroek E, Flinterman L, Vorstenbosch S, van Dijk L, Verheij R. Electronic Health Record–Triggered Research Infrastructure Combining Real-world Electronic Health Record Data and Patient-Reported Outcomes to Detect Benefits, Risks, and Impact of Medication: Development Study. JMIR Medical Informatics 2022;10(3):e33250 View
  33. Ju A, Cazzolli R, Howell M, Scholes-Robertson N, Wong G, Jaure A. Novel Endpoints in Solid Organ Transplantation: Targeting Patient-reported Outcome Measures. Transplantation 2023;107(9):1895 View
  34. Nguyen Huynh A, Besse C, Mediouni Z, El May E, Shoman Y, Hansez I, Guseva Canu I. Diagnostic Performances of an Occupational Burnout Detection Method Designed for Healthcare Professionals. International Journal of Environmental Research and Public Health 2021;18(23):12300 View
  35. Voskuilen R, Boonen B, Tilman P, Schotanus M, Most J. Demographics are no clinically relevant predictors of patient-reported knee osteoarthritis symptoms - Comprehensive multivariate analysis. Journal of Orthopaedics 2023;35:85 View
  36. Rian T, Sand K, Skogvoll E, Klepstad P, Wik T. A Web-Based Communication Tool for Postoperative Follow-up and Pain Assessment at Home After Primary Knee Arthroplasty: Feasibility and Usability Study. JMIR Formative Research 2022;6(4):e34543 View
  37. Consolo L, Castellini G, Cilluffo S, Basile I, Lusignani M. Electronic patient-reported outcomes (e-PROMs) in palliative cancer care: a scoping review. Journal of Patient-Reported Outcomes 2022;6(1) View
  38. Koh J. CORR Insights®: Phone Administration of the Western Ontario Shoulder Instability Index Is More Reliable Than Administration via Email. Clinical Orthopaedics & Related Research 2023;481(1):94 View
  39. Lin M, Kligler S, Friedman B, Kim H, Rising K, Samuels-Kalow M, Eucker S. Barriers and Best Practices for the Use of Patient-Reported Outcome Measures in Emergency Medicine. Annals of Emergency Medicine 2023;82(1):11 View
  40. Ng V, Dunphy C, Shemesh E, Lobritto S, Eisenberg E, Pomponi C, Szolna J, Wilkerson D, Gupta N, Romero R, Perito E, DiPaola F, Gonzalez‐Peralta R, Hsu E, Saarela K, Mohammad S, Superina R, Logan S, Miller D, Krise‐Confair C, Swami N, Mazariegos G. Feasibility of using a patient‐reported outcome measure into clinical practice following pediatric liver transplantation: The Starzl Network experience. Pediatric Transplantation 2023;27(1) View
  41. Lidington E, Hogan H, Gandolfi A, Lawrence J, Younger E, Cho H, Peckitt C, Mohammed K, Matharu S, Scerri L, Husson O, Cruickshank S, Turner R, Wedlake L. Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation. Journal of Patient-Reported Outcomes 2022;6(1) View
  42. Shih S, Donati M, Cohen L, Shneider C, Sil S. A dyadic analysis of parent and child pain catastrophizing and health-related quality of life in pediatric sickle cell disease. Pain 2023;164(7):1537 View
  43. Hirao K, Takahashi H, Kuroda N, Uchida H, Tsuchiya K, Kikuchi S. Differences in Center for Epidemiologic Studies Depression Scale, Generalized Anxiety Disorder-7 and Kessler Screening Scale for Psychological Distress Scores between Smartphone Version versus Paper Version Administration: Evidence of Equivalence. International Journal of Environmental Research and Public Health 2023;20(6):4773 View
  44. Bharmal N, Rennick A, Shideler A, Blazel M, Jones R, Wilson C, Pfoh E. Health-Related Social Needs: Which Patients Respond to Screening and Who Receives Resources?. Journal of General Internal Medicine 2023;38(12):2695 View
  45. Anderson N, Cockwell P, Aiyegbusi O, Calvert M. Green nephrology: the role of telemedicine and electronic patient-reported outcomes. Journal of Kidney Care 2023;8(2):77 View
  46. Haines E, Lux L, Swift C, Matson M, Kleissler D, Stein J, Childers J, Salsman J, Smitherman A. The Adolescent and Young Adult Needs Assessment & Service Bridge (NA-SB): A single-arm feasibility pilot study. Journal of Psychosocial Oncology 2024;42(1):16 View
  47. Parisot III P, Wheeler F, Bonnet K, Rebeiro P, Schember C, McCainster K, Cooper R, Berthaud V, Schlundt D, Pettit A. Patient-Reported Outcomes Collection at an Urban HIV Clinic Associated With a Historically Black Medical College in the Southern United States: Qualitative Interview Study Among Patients With HIV. JMIR Formative Research 2023;7:e42888 View
  48. Woodward D, Wilens T, Glantz M, Rao V, Burke C, Yule A. A systematic review of substance use screening in outpatient behavioral health settings. Addiction Science & Clinical Practice 2023;18(1) View
  49. Kortbeek S, Hossain A, John T, Ng V. Equivalence of the adapted electronic Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire: A patient-reported outcome measure for children and teens. Liver Transplantation 2023;29(9):1012 View
  50. Kwon J, Moynihan M, Lau F, Wolff A, Torrejon M, Irlbacher G, Hung L, Lambert L, Sawatzky R. Seeing the Person Before the Numbers: Personas to Understand Patients’ Life Stories from Interaction of Patient-Reported Outcome Measures in Practice Settings. SSRN Electronic Journal 2022 View
  51. Østergaard L, Nørgaard B, Holm M, Hansen A, Lund L, Poulsen M. Patients' experiences of completing patient‐reported outcomes in clinical trials: An interview study. International Journal of Urological Nursing 2023;17(3):180 View
  52. Woolley K, Bright D, Ayres T, Morgan F, Little K, Davies A. Mapping Inequities in Digital Health Technology Within the World Health Organization’s European Region Using PROGRESS PLUS: Scoping Review. Journal of Medical Internet Research 2023;25:e44181 View
  53. García Abejas A, Serra Trullás A, Sobral M, Canelas D, Leite Costa F, Salvador Verges À. Improving the Understanding and Managing of the Quality of Life of Patients With Lung Cancer With Electronic Patient-Reported Outcome Measures: Scoping Review. Journal of Medical Internet Research 2023;25:e46259 View
  54. Saleem J, Beak P, Eardley W, Trompeter A. Digitalising patient reported outcome collection tools in orthopaedic trauma–A scoping review. Injury 2023;54(7):110792 View
  55. Lostelius P, Mattebo M, Adolfsson E, Söderlund A, Andersén M, Vadlin S, Revenäs Å. Development and usability evaluation of an electronic health report form to assess health in young people: a mixed-methods approach. BMC Medical Informatics and Decision Making 2023;23(1) View
  56. Buchholz M, Weber N, Borel S, Sayah S, Durr A, Xie F, Schulz J, Reetz K, Boesch S, Klopstock T, Karin I, Schöls L, Grobe-Einsler M, Klockgether T, Davies E, Schmeder M, Nadke A, Michalowsky B. Patient-reported, health economic and psychosocial outcomes in patients with Friedreich ataxia (PROFA): protocol of an observational study using momentary data assessments via mobile health app. BMJ Open 2023;13(8):e075736 View
  57. Anderson N, Kyte D, McMullan C, Cockwell P, Aiyegbusi O, Verdi R, Calvert M. Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study. BMJ Open 2023;13(7):e070927 View
  58. Consolo L, Colombo S, Basile I, Rusconi D, Campa T, Caraceni A, Lusignani M. Barriers and facilitators of electronic patient-reported outcome measures (e-PROMs) for patients in home palliative cancer care: a qualitative study of healthcare professionals’ perceptions. BMC Palliative Care 2023;22(1) View
  59. Feinberg J, Zivanovic O, Hannon M, McCready T, Desai P, Kim S, Aviki E, Mueller J, Jewell E, Long Roche K, Gardner G, Chi D, Sonoda Y, Brown C, Abu-Rustum N, Cracchiolo J, Leitao M, Broach V. Patient-reported symptoms after minimally invasive hysterectomy and association with postoperative complications. Gynecologic Oncology 2023;175:163 View
  60. Zebralla V, Wichmann G, Wiegand S, Dietz A. Digitale PROM in der Nachsorge von Personen mit Kopf-Hals-Tumoren*. InFo Hämatologie + Onkologie 2023;26(6):16 View
  61. Hu X, Liv P, Lundström E, Norström F, Lindahl O, Borg K, Sunnerhagen K. Study protocol for a randomized, controlled, multicentre, pragmatic trial with Rehabkompassen®—a digital structured follow-up tool for facilitating patient-tailored rehabilitation in persons after stroke. Trials 2023;24(1) View
  62. Narra L, Verdini N, Lapen K, Nipp R, Gillespie E. Patient-Reported Outcomes in Clinical Trials: From an Endpoint to an Intervention in Cancer Care. Seminars in Radiation Oncology 2023;33(4):358 View
  63. Pan J, Yap N, Prasse T, Hofstetter C. Validation of smartphone app-based digital patient reported outcomes in full-endoscopic spine surgery. European Spine Journal 2023;32(8):2903 View
  64. Pritchett J, Patt D, Thanarajasingam G, Schuster A, Snyder C. Patient-Reported Outcomes, Digital Health, and the Quest to Improve Health Equity. American Society of Clinical Oncology Educational Book 2023;(43) View
  65. Ruseckaite R, Jayasinghe R, Bavor C, Dean J, Daly O, Ahern S. Evaluation and acceptability of patient-reported outcome measures in women following pelvic organ prolapse procedures. BMC Health Services Research 2023;23(1) View
  66. Taramasco C, Rimassa C, Noël R, Bravo Storm M, Sánchez C. Co-design of a Mobile App for Engaging Breast Cancer Patients in Reporting Health Experiences: Qualitative Case Study. Journal of Medical Internet Research 2023;25:e45968 View
  67. Govindaraj R, Agar M, Currow D, Luckett T. Assessing Patient-Reported Outcomes in Routine Cancer Clinical Care Using Electronic Administration and Telehealth Technologies: Realist Synthesis of Potential Mechanisms for Improving Health Outcomes. Journal of Medical Internet Research 2023;25:e48483 View
  68. McMullan C, Retzer A, Hughes S, Aiyegbusi O, Bathurst C, Boyd A, Coleman J, Davies E, Denniston A, Dunster H, Frost C, Harding R, Hunn A, Kyte D, Malpass R, McNamara G, Mitchell S, Mittal S, Newsome P, Price G, Rowe A, van Reil W, Walker A, Wilson R, Calvert M. Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial. Journal of Patient-Reported Outcomes 2023;7(1) View
  69. Vaitkevičienė G, Ažukaitis K, Jankauskienė A, Petrėnė J, Puronaitė R, Trinkūnas J, Jankauskienė D. Development and Integration of Patient-Reported Measures into E-Health System: Pilot Feasibility Study. Healthcare 2023;11(16):2290 View
  70. Johansen I, Småstuen M, Løkkeberg S, Kristensen V, Høivik M, Lund C, Olsen B, Strande V, Huppertz-Hauss G, Aabrekk T, Bengtson M, Ricanek P, Detlie T, Frigstad S, Jelsness-Jørgensen L, Opheim R. Symptoms and symptom clusters in patients newly diagnosed with inflammatory bowel disease: results from the IBSEN III Study. BMC Gastroenterology 2023;23(1) View
  71. Hughes J, Flood T. Patients' experiences of engaging with electronic Patient Reported Outcome Measures (PROMs) after the completion of radiation therapy for breast cancer: a pilot service evaluation. Journal of Medical Radiation Sciences 2023;70(4):424 View
  72. Zolnowski-Kolp V, Um Din N, Havreng-Théry C, Pariel S, Veyron J, Lafuente-Lafuente C, Belmin J. Assessment of Frailty by the French Version of the Vulnerable Elders Survey-13 on Digital Tablet: Validation Study. Journal of Medical Internet Research 2023;25:e42017 View
  73. Porta-Etessam J, Santos-Lasaosa S, Rodríguez-Vico J, Núñez M, Ciudad A, Díaz-Cerezo S, Comellas M, Pérez-Sádaba F, Lizán L, Guerrero-Peral A. Evaluating the Impact of a Training Program in Shared Decision-Making for Neurologists Treating People with Migraine. Neurology and Therapy 2023;12(4):1319 View
  74. Muilwijk D, van Paridon T, van der Heijden D, Faber-Bisschop B, Zomer-van Ommen D, Heijerman H, van der Ent C. Development and validation of a novel personalized electronic patient-reported outcome measure to assess quality of life (Q-LIFE): a prospective observational study in people with Cystic Fibrosis. eClinicalMedicine 2023;62:102116 View
  75. Ažukaitis K, Puronaitė R, Vaitkevičienė G, Trinkūnas J, Jankauskienė A, Jankauskienė D. Integrated Collection of Patient-Reported Outcomes and Experiences in Children with Kidney and Hematological Diseases: A Pilot Study. Children 2023;10(7):1245 View
  76. Franzoi M, Gillanders E, Vaz-Luis I. Unlocking digitally enabled research in oncology: the time is now. ESMO Open 2023;8(5):101633 View
  77. Ng A, Cheng J, Lam J, Wong C, Cheng W, Tse E, Chao D, Choi E, Wong R, Lam C. Patient enablement and health-related quality of life for patients with chronic back and knee pain: a cross-sectional study in primary care. British Journal of General Practice 2023;73(736):e867 View
  78. Oldenburger E, Isebaert S, Coolbrandt A, Van Audenhove C, Haustermans K. The use of electronic Patient Reported Outcomes in follow-up after palliative radiotherapy: A survey study in Belgium. PEC Innovation 2023;3:100243 View
  79. Mowlem F, Elash C, Dumais K, Haenel E, O’Donohoe P, Olt J, Kalpadakis-Smith A, James B, Balestrieri G, Becker K, Newara M, Kern S. Best Practices for the Electronic Implementation and Migration of Patient-Reported Outcome Measures. Value in Health 2024;27(1):79 View
  80. Taylor D, Alquiza P, Jones P, Wilson I, Bi W, Sim D, Crabb D. Tablet‐based tests of everyday visual function in a diabetic macular oedema (DME) clinic waiting area: A feasibility study. Ophthalmic and Physiological Optics 2024;44(2):388 View
  81. Dunlop E, Ferguson A, Mueller T, Baillie K, Laskey J, Clarke J, Kurdi A, Wales A, Connolly T, Bennie M. Involving Patients and Clinicians in the Design of Wireframes for Cancer Medicines Electronic Patient Reported Outcome Measures in Clinical Care: Mixed Methods Study. JMIR Formative Research 2023;7:e48296 View
  82. Özden F, Güçlü B, Tümtürk İ, Doğrukök Ö, İmerci A, Tuğay B. The effect of visual feedback-based clinical monitoring application in patients with chronic low back pain: a randomized controlled trial. European Spine Journal 2024;33(2):505 View
  83. Williams H, Steinberg S, Leon K, Vingum R, Hu M, Berzin R, Hagg H, Hanaway P. Predictive Criterion Validity of the Parsley Symptom Index Against the Patient-Reported Outcomes Measurement Information System-10 in a Chronic Disease Cohort: Retrospective Cohort Study. JMIR Formative Research 2024;8:e53316 View
  84. te Braake E, Grünloh C, Tabak M. Shifting Responsibilities: Developing a Pan-European Service Model for an eHealth Technology Supporting Self-Management of People with Chronic Obstructive Pulmonary Disease and Comorbidities. International Journal of Chronic Obstructive Pulmonary Disease 2024;Volume 19:175 View
  85. Rana P, Brennan J, Johnson A, Turcotte J, Petre B. Social Determinants of Health in Maryland Hip Arthroscopy Patients. Cureus 2024 View
  86. Šafran V, Lin S, Nateqi J, Martin A, Smrke U, Ariöz U, Plohl N, Rojc M, Bēma D, Chávez M, Horvat M, Mlakar I. Multilingual Framework for Risk Assessment and Symptom Tracking (MRAST). Sensors 2024;24(4):1101 View
  87. Lorenzen M, Pedersen C, Carreon L, Clemensen J, Andersen M. Measuring quality of recovery (QoR-15) after degenerative spinal surgery: A prospective observational study. Brain and Spine 2024;4:102767 View
  88. Valsecchi A, Battista V, Terzolo S, Dionisio R, Lacidogna G, Marino D, Quarà V, Sperti E, Tuninetti V, Vignani F, Zichi C, Bounous V, Valabrega G, Ferrero A, Biglia N, Di Maio M. Adoption of electronic patient-reported outcomes in cancer clinical practice: the point of view of Italian patients. ESMO Real World Data and Digital Oncology 2024;3:100025 View
  89. Gani C, Bickenbach P, Tenev A, Niyazi M, Festl-Wietek T, Herrmann-Werner A. Impact of electronic patient-reported outcome measures on patients’ perception of the physician - the randomized ePREFERENCE study. Radiotherapy and Oncology 2024;194:110192 View
  90. Torbjørnsen A, Spildo I, Mollestad M, Jensen A, Singstad T, Weldingh N, Joranger P, Ribu L, Holmen H. Investigating Digital Patient-Reported Outcome Measures in Patient-Centered Diabetes Specialist Outpatient Care (DigiDiaS): Protocol for a Multimethod Prospective Observational Study. JMIR Research Protocols 2024;13:e52766 View
  91. Hoffmann C, Avery K, Macefield R, Dvořák T, Snelgrove V, Blazeby J, Hopkins D, Hickey S, Gibbison B, Rooshenas L, Williams A, Aning J, Bekker H, McNair A. Usability of an Automated System for Real-Time Monitoring of Shared Decision-Making for Surgery: Mixed Methods Evaluation. JMIR Human Factors 2024;11:e46698 View
  92. Gabr A, Fontalis A, Robinson J, Hage W, O'Leary S, Spalding T, S. Haddad F. Ten‐year results from the UK National Ligament Registry: Patient characteristics and factors predicting nonresponders for completion of outcome scores. Knee Surgery, Sports Traumatology, Arthroscopy 2024;32(4):811 View
  93. Consolo L, Rusconi D, Colombo S, Basile I, Campa T, Pezzera D, Benenati S, Caraceni A, Lusignani M. Implementation of the e-IPOS in Home Palliative Cancer Care: A Quasiexperimental Pilot Study. American Journal of Hospice and Palliative Medicine® 2024 View
  94. Rahman N, Ibrahim A, Sagar Verma R, Schwartz R, Clarke D, Gibson D, Vocci F, Casanova B, Pagano A. Opioid Use Disorder Treatment Prescribers’ Views of Implementing an Electronic System to Collect Patient-Reported Outcomes Measures. Journal of Drug Issues 2024 View
  95. Mercadal-Orfila G, Herrera-Pérez S, Piqué N, Mateu-Amengual F, Ventayol-Bosch P, Maestre-Fullana M, Serrano-López de las Hazas J, Fernández-Cortés F, Barceló-Sansó F, Rios S. Implementing Systematic Patient-Reported Measures for Chronic Conditions Through the Naveta Value-Based Telemedicine Initiative: Observational Retrospective Multicenter Study. JMIR mHealth and uHealth 2024;12:e56196 View
  96. Kowalski C, Wesselmann S, van Oorschot B, Alt-Epping B, Breidenbach C, Sibert N, Fischer F, Käsmann L, Karger A, Karsten M, Kerek-Bodden H, Sulzer S, Wedding U, Graeven U. „Patient-reported outcomes“ in der onkologischen Versorgung – aktuelle Anwendungsfelder und Initiativen der Deutschen Krebsgesellschaft. Die Onkologie 2024;30(5):411 View
  97. Bogor S, Niknam K, Less J, Andaya V, Swarup I. Automating Patient-reported Data Collection: Does it Work?. Journal of Pediatric Orthopaedics 2024;44(6):402 View
  98. Drury A, Boland V, Dowling M. Patient-Reported Outcome and Experience Measures in Advanced Nursing Practice: What Are Key Considerations for Implementation and Optimized Use?. Seminars in Oncology Nursing 2024;40(3):151632 View
  99. Consolo L, Basile I, Colombo S, Rusconi D, Pasquot L, Campa T, Caraceni A, Lusignani M. Exploring patient perspectives on electronic patient-reported outcome measures in home-based cancer palliative care: A qualitative study. DIGITAL HEALTH 2024;10 View
  100. Obeagu E, Obeagu G. Managing gastrointestinal challenges: Diarrhea in sickle cell anemia. Medicine 2024;103(18):e38075 View
  101. Claudio M, Rehany Z, Stachtari K, Guadagno E, Osmanlliu E, Poenaru D. Exploring the digital divide: results of a survey informing mobile application development. Frontiers in Digital Health 2024;6 View
  102. Frid S, Amat-Fernández C, Fuentes-Expósito M, Muñoz-Mateu M, Valachis A, Sisó-Almirall A, Grau-Corral I. Mapping the Evidence on the Impact of mHealth Interventions on Patient-Reported Outcomes in Patients With Breast Cancer: A Systematic Review. JCO Clinical Cancer Informatics 2024;(8) View
  103. Haines E, Shelton R, Foley K, Beidas R, Dressler E, Kittel C, Chaiyachati K, Fayanju O, Birken S, Blumenthal D, Rendle K. Addressing social needs in oncology care: another research-to-practice gap. JNCI Cancer Spectrum 2024;8(3) View
  104. Salmani H, Nasiri S, Ahmadi M. The advantages, disadvantages, threats, and opportunities of electronic patient-reported outcome systems in cancer: A systematic review. DIGITAL HEALTH 2024;10 View
  105. Srinivasan R, Rodgers-Melnick S, Rivard R, Kaiser C, Vincent D, Adan F, Dusek J, Nakhostin-Ansari A. Implementing paper-based patient-reported outcome collection within outpatient integrative health and medicine. PLOS ONE 2024;19(5):e0303985 View
  106. Moore A, Blumenthal K, Chambers C, Namazy J, Nowak-Wegrzyn A, Phillips E, Rider N. Improving Clinical Practice Through Patient Registries in Allergy and Immunology. The Journal of Allergy and Clinical Immunology: In Practice 2024;12(10):2599 View
  107. Schuster A, Crossnohere N, Boakye E, Angove R, Baldwin B, Barreto E, Chen R, Gillespie T, Hamilton B, McCleary N, Karmo M, Kaufmann T, Lee W, Mehta V, Meyer L, Mittal K, Owens L, Peterson R, Pusic A, Rainey A, Richardson A, Shapiro L, Sibbitt B, Smith C, Vargo M, Vickers A, Brundage M, Snyder C. A Framework to Promote Implementation of Patient-Reported Outcomes in Institutions Caring for Vulnerable and Underserved Cancer Populations. The Patient - Patient-Centered Outcomes Research 2024 View
  108. Lin J, Huang E, Rauch B, Young L, Allen J, Myers J. Improving Asthma Control Test completion rates across a multi-site pediatric pulmonary clinic network: a quality improvement initiative. Journal of Asthma 2024;61(12):1629 View
  109. Andreasen K, Fernandez Lopez R, Wu C, Linde D, Oviedo-Gutiérrez A, López Megías J, Martín-de-las-Heras S, Ludmila Zapata-Calvente A, Ankerstjerne L, de-León-de-León S, Dokkedahl S, Schei B, Rasch V. The effect of a digital intervention on symptoms of depression in pregnant women exposed to Intimate partner violence in Denmark and Spain (STOP study). European Journal of Obstetrics & Gynecology and Reproductive Biology 2024;301:120 View
  110. Anderson M, van Kessel R, Wood E, Stokes A, Fistein J, Porter I, Mossialos E, Valderas J. Understanding factors impacting patient-reported outcome measures integration in routine clinical practice: an umbrella review. Quality of Life Research 2024;33(10):2611 View
  111. Adegboye O, Churchill J, Moorjani J, Johnson H, Capper S, Booker J, Parnham A, Lau M, Sangar V, Faivre-Finn C. The Development and Feasibility of a Novel Electronic Patient-Reported Outcome Measures (Eproms) Questionnaire in patients with penile cancer. Clinical Genitourinary Cancer 2024;22(5):102168 View
  112. Hettiarachchi Senarath G, Delir Haghighi P, Bai L, Shannon M, Andrew N, Srikanth V, Snowdon D, O’Connor D. Barriers and facilitators to the uptake of electronic collection and use of patient-reported measures in routine care of older adults: a systematic review with qualitative evidence synthesis. JAMIA Open 2024;7(3) View
  113. Gu Z, Wu L, Li J, Zheng S, Huang M. A Visual Analysis of Patient-Reported Outcomes in Lung Cancer From 2013 to 2023. Cancer Control 2024;31 View
  114. Otten M, Djamei V, Augustin M. Development, Feasibility, and Acceptability of the Electronic Patient Benefit Index for Psoriasis in Clinical Practice: Mixed Methods Study. JMIR Dermatology 2024;7:e54762 View
  115. Yi H, Ou-Yang X, Hong Q, Liu L, Liu M, Wang Y, Zhang G, Ma F, Mu J, Mao Y. Patient-reported outcomes in lung cancer surgery: A narrative review. Asian Journal of Surgery 2024 View
  116. Nikkhah J, Steinbeck V, Grobe T, Breitkreuz T, Pross C, Busse R. Evaluating the Population-Based Usage and Benefit of Digitally Collected Patient-Reported Outcomes and Experiences in Patients With Chronic Diseases: The PROMchronic Study Protocol. JMIR Research Protocols 2024;13:e56487 View
  117. van der Veer S, Anderson N, Finnigan R, Kyte D. Electronic Collection of Patient-Reported Outcomes to Improve Kidney Care: Benefits, Drawbacks, and Next Steps. Seminars in Nephrology 2024;44(3-4):151552 View
  118. Roberts A, Benterud E, Santana M, Engbers J, Lorenz C, Verdin N, Pearson W, Edgar P, Adekanye J, Javaheri P, MacDonald C, Simmons S, Zelinsky S, Caird J, Sawatzky R, Har B, Ghali W, Norris C, Graham M, James M, Wilton S, Sajobi T. APPROACH e-PROM system: a user-centered development and evaluation of an electronic patient-reported outcomes measurement system for management of coronary artery disease. Journal of Patient-Reported Outcomes 2024;8(1) View
  119. del Olmo Rodríguez M, Martos Martinez R, Pascual Martínez A, Miranda Castillo C, Short Apellaniz J, Pfang B, Baca-García E, Córdoba Mascuñano R. Closing the value-based circle in shared decision-making: a digital framework for informing the shared decision-making process through patient reported outcome and experience measures. Frontiers in Public Health 2024;12 View
  120. Copland R, Hanke S, Rogers A, Mpaltadoros L, Lazarou I, Zeltsi A, Nikolopoulos S, MacDonald T, Mackenzie I. The Digital Platform and Its Emerging Role in Decentralized Clinical Trials. Journal of Medical Internet Research 2024;26:e47882 View
  121. Bergh E, Rennie K, Espinoza J, Johnson A, Papanna R. Use of Web-Based Surveys to Collect Long-Term Pediatric Outcomes in Patients With Twin-Twin Transfusion Syndrome Treated With Fetoscopic Laser Photocoagulation: Observational Study. JMIR Pediatrics and Parenting 2024;7:e60039 View
  122. Škėma M, Doftartė A, Perkumienė D, Aleinikovas M, Perkumas A, Sousa H, Pimenta Dinis M, Beriozovas O. Development of a Methodology for the Monitoring of Socio-Economic Indicators of Private Forest Owners towards Sustainable Forest Management: The Case of Lithuania. Forests 2024;15(9):1657 View
  123. Khakzad T, Putzier M, Bartschke A, Poyraz R, Taheri N. Standardized Usage of Electronic Patient-Reported Outcome Measurements is Time-Efficient and Feasible. Journal of Personalized Medicine 2024;14(9):986 View
  124. Attamimi S, Marshman Z, Deery C, Radley S, Gilchrist F. A Behavior-Based Model to Validate Electronic Systems Designed to Collect Patient-Reported Outcomes: Model Development and Application. JMIR Formative Research 2024;8:e56370 View
  125. Hughes A, Scholes-Robertson N, Ju A, Jauré A. Core Patient-Reported Outcomes for Trials in Nephrology. Seminars in Nephrology 2024;44(3-4):151549 View
  126. Anthony S, Pol S, Selkirk E, Matthiesen A, Klaassen R, Manase D, Silva A, Barwick M, Stinson J, Damer A, Ayibiowu M, Dong S, Oreskovich S, Brudno M. User-Centered Design and Usability of Voxe as a Pediatric Electronic Patient-Reported Outcome Measure Platform: Mixed Methods Evaluation Study. JMIR Human Factors 2024;11:e57984 View
  127. Rusconi D, Basile I, Rampichini F, Colombo S, Arba L, Pancheri M, Consolo L, Lusignani M. Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review. Journal of Palliative Care 2024;39(4):298 View
  128. Salmani H, Nasiri S, Alemrajabi M, Ahmadi M. Advancing patient-centered cancer care: a systematic review of electronic patient-reported outcome measures. Frontiers in Rehabilitation Sciences 2024;5 View
  129. Békássy S, Cserháti P, Dénes Z, Fazekas G, Kullmann L, Szabó J, Vámos H. Az alapellátás és a rehabilitációs medicina közös útkeresése a fogyatékosság megelőzése és a rehabilitáció fejlesztése érdekében. Orvosi Hetilap 2024;165(38):1483 View
  130. Segall T, Rodgers-Melnick S, Surdam J, Srinivasan R, Dusek J. Patient Experience and Attitudes Toward Electronic Intake and Patient-Reported Outcomes Within an Outpatient Whole Health Center. Global Advances in Integrative Medicine and Health 2024;13 View
  131. Maurer J, Saibold A, Gerl K, Koller M, Koelbl O, Pukrop T, Windschuettl S, Einhell S, Herrmann-Johns A, Raptis G, Mueller K. Systematic development of a patient-reported ONCOlogical-ROUTinE-Screening (ONCO-ROUTES) procedure at the University Cancer Center Regensburg. Journal of Cancer Research and Clinical Oncology 2024;150(9) View
  132. Meirte J, Hellemans N, Van Daele U, Maertens K, Denteneer L, Anthonissen M, Moortgat P. Measurement Equivalence and Feasibility of the Electronic and Paper Versions of the POSAS, EQ-5D, and DLQI: A Randomized Crossover Trial. European Burn Journal 2024;5(4):321 View
  133. Biondi A, Winsor A, Ebelthite C, Onih J, Pick S, Nicholson T, Pal D, Richardson M. A comprehensive digital mental health screening tool for people with epilepsy: A feasibility study in UK outpatients. Epilepsy & Behavior 2024;160:110103 View
  134. Thomas S, Neenumol K, Chacko S, Prinu J, Pillai M, Pisharody S, Chozhakkat S, Vijay M, Iliyas A, Harikrishnan S, Ganapathi S, Jeemon P. Feasibility of a nurse-led, mHealth-assisted, and team-based collaborative care model for heart failure care in India: Findings from a multi-stakeholder qualitative study. Wellcome Open Research 2024;9:219 View
  135. Mulherin B, Shenoy A, Arnett L, Jiao W, Guarinoni J, Sarda S, Min J, Dingli D. Real-World Study of US Adults with Paroxysmal Nocturnal Hemoglobinuria Treated with Pegcetacoplan. Hematology Reports 2024;16(4):669 View
  136. van Engen V, van Lint C, Peters I, Ahaus K, Buljac-Samardzic M, Bonfrer I. Enhancing Patient Response to Patient-Reported Outcome Measures: Insights From a Leading Dutch University Hospital. Value in Health 2024 View
  137. Kissler K, Phillippi J, Erickson E, Holmes L, Tilden E. Collecting Real-Time Patient-Reported Outcome Data During Latent Labor: Feasibility Study of the MyCap Mobile App in Prospective Person-Centered Research. JMIR Formative Research 2024;8:e59155 View
  138. Ali S, Gambin A, Chadwick H, Dixon W, Crawford A, Van der Veer S. Strategies to optimise the health equity impact of digital pain self-reporting tools: a series of multi-stakeholder focus groups. International Journal for Equity in Health 2024;23(1) View
  139. McMullan C, Turner G, Retzer A, Belli A, Davies E, Nice L, Flavell L, Flavell J, Calvert M. Testing of an electronic patient-reported outcome platform in the context of Traumatic Brain Injury: the PRiORiTy usability study (Preprint). JMIR Formative Research 2024 View
  140. Yamaguchi K, Higashiyama N, Umemiya M, Inayama Y, Koike A, Ueda A, Mizuno R, Taki M, Yamanoi K, Murakami R, Hamanishi J, Mandai M. Electronic patient-reported outcomes as digital therapeutics for patients with cancer: a narrative review of current practices and future directions. International Journal of Clinical Oncology 2024 View
  141. Scherrens A, Jacobs A, Beernaert K, Pardon K, Raemdonck E, Fallon M, Cresswell K, Faric N, Williams R, Lundeby T, Hjermstad M, Deliens L, Kaasa S. Integrating patient-centred and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways. Palliative Care and Social Practice 2024;18 View

Books/Policy Documents

  1. da Silva Lopes A, Colomer-Lahiguera S, Eicher M. Developing and Utilizing Digital Technology in Healthcare for Assessment and Monitoring. View
  2. Webster K, Peipert J, Lent L, Bredle J, Cella D. Handbook of Quality of Life in Cancer. View
  3. Vadhwana B, Tarazi M. Patient Reported Outcomes and Quality of Life in Surgery. View
  4. Castro M, Wang M. Chronic Illness Care. View
  5. Komalasari R. Multi-Sector Analysis of the Digital Healthcare Industry. View
  6. Gil Deza E. Improving Clinical Communication. View